Formerly known as:
Children and Youth with Special Health Care Needs
National Research Network (CYSHCNet)

Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD)

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Link to Measure: Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD)

Description Developed for children with severe cerebral palsy to assess the health status, comfort, wellbeing and ease of caregiving
Domain
Quality of Life
Reliance on Functional Ability Yes
Topics
Emotional Distress
Physical Function – Mobility
Physical Health
Scoping review
Social Health
Data Type Parent/caregiver Proxy, Patient
Data Source
Age Ages 2-5, Ages 6-11, Ages 12-18
Availability Publicly available; may have a cost
Number of Items 37
Validated in CYSHCN Yes
Validated in any population Yes
Languages Arabic, Chinese, English, French, German, Italian, Spanish, Other
Use Examples Narayanan UG, Fehlings D, Weir S, Knights S, Kiran S, Campbell K. Initial development and validation of the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD). Dev Med Child Neurol. 2006 Oct;48(10):804-12. doi: 10.1017/S0012162206001745. PMID: 16978459.