← Back to Inventory Measures
Link to Measure: PROMIS
| Description | 35 items cover 7 elements in 2 domains of the “10 Domains for Conceptualizing Health for CMC”: Child HRQoL (4 elements) and Child Social Integration (3 elements). If selecting items to measure quality of life, please consider how QoL is complex and multifaceted; careful selection of measures and attention to potential biases are critical. Advise thoughtful consideration of desired constructs to measure and engaging individuals with lived experience in study design. |
|---|---|
| Domain | Child Health, Vulnerability, and Complexity Family Health |
| Topics | Anxiety Depressive Symptoms Fatigue Pain Peer Relationships Physical Function – Mobility |
| Data Type | Parent/caregiver Proxy, Patient |
| Data Source | Survey |
| Availability | Publicly available at no cost |
| Number of Items | 35 items |
| Validated in CYSHCN | Yes |
| Validated in any population | Yes |
| Languages | English, Spanish, Other |
| Use Examples | Greenzang KA, Montgomery KE, DuVall A, Roth ME, Krailo M, Nuño MM, Renfro L, DelRocco N, Doski J, Kelly K, Castellino SM, McNeer J, O'Brien MM, Reed D, Janeway K, Hinds PS, Zupanec S, Parsons SK. Incorporation of patient-reported outcomes in pediatric cancer clinical trials: design, implementation, and dissemination. J Natl Cancer Inst. 2025 Mar 31:djaf083. doi: 10.1093/jnci/djaf083. Epub ahead of print. PMID: 40163691. |