News
Welcome to the CYSHCNet blog. Here we share stories and perspectives of children and youth with special health care needs (CYSHCN), their families and caregivers, and our academic researchers. Interested in sharing your story? Email us.
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Funding Opportunity for Early-Career Investigators
Applications now open! If you’re an early career researcher interested in health systems research for children and youth with special health care needs (CYSHCN), we invite you to apply for our Emerging Investigators (EI) Guided Research Program. Up to three projects focused on health systems research for CYSHCN will be funded up to $15,000 (1-year). The program has
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2025 Emerging Investigators
Each year, the Systems & Policy Research Network‘s Emerging Investigator (EI) Guided Research Program welcomes up to three projects focused on health systems research for children and youth with special health care needs. The yearlong partnership with the Emerging Investigators provides funding and mentorship and helps build the foundation for family partnership in research. In
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Dr. Rahel Berhane Honored for Mid-Career Achievement in Caring for Children with Medical Complexity
Rooted in Lived Experience For Dr. Berhane, the journey into complex care began not only as a pediatrician but also at home, as the mother of a son with Down syndrome, autism, and epilepsy. When her son’s care needs grew more complex, she experienced firsthand the broken, maze-like system that so many families must navigate.
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Cheri Scott Honored for Lifetime Achievement in Caring for Children with Medical Complexity
The Systems and Policy Research Network (SPRNetwork formally known as CYSHCNet) is proud to announce Cheri Scott as a recipient of the 2025 Pediatric Complex Care Lifetime Achievement Award. This honor celebrates Cheri’s exceptional, lasting contributions to improving the lives of children with medical complexity and their families. About the Award The Pediatric Complex Care