Category: Research
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Applications Open for the Emerging Investigators (EI) Program
The Systems & Policy Research Network Emerging Investigator Guided Research Program funds up to three projects each year dedicated to improving health systems for children and youth with special health care needs (CYSHCN). Apply by July 1! Selected investigators receive up to $15,000, one year of mentorship, and guidance in building meaningful family partnerships in research. Who should apply?…
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Funding Opportunity for Early-Career Investigators
Applications now open! If you’re an early career researcher interested in health systems research for children and youth with special health care needs (CYSHCN), we invite you to apply for our Emerging Investigators (EI) Guided Research Program. Up to three projects focused on health systems research for CYSHCN will be funded up to $15,000 (1-year). The program has…
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Researchers, We’ve Updated Our Primary Data Center to Help Jumpstart Your Network Studies
The Primary Data Center (PDC) helps researchers design and implement multi-site studies that benefit CYSHCN and their families. We help in three ways: We understand the challenges of conducting multi-site research and look forward to helping you and your team at any stage.
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CYSHCNet Researchers Look at Durable Medical Equipment and Supplies
Many children in the US need support for everyday activities due to health issues. Some kids need durable equipment and supplies (DMES) to help them, like glasses or machines to assist with breathing. Despite these tools being common in everyday care, not much is known about how they’re used and how they impact health. A…
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New Study: Advancing Disability Education for Pediatric Trainees
Pediatric providers need your help! CYSCHNet researchers at Lurie Children’s want to talk with children with disabilities and their families, teachers, school administrators, and hospital administrators to: Parents, family caregivers, and guardians will be interviewed in groups together, while teachers and administrators will be interviewed in other focus groups. Anyone interested can participate by following…
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Learning from Families of Children with Complex Health Issues
A team of family leaders, clinicians and researchers is interested in learning from families of children, youth or young adults with complex health issues. The team wants to understand what day-to-day life is like for families, and things that the healthcare system can do to improve family well-being. If you are a caregiver of a…
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CYSHCNet Researcher Receives Funding to Improve Healthcare at Home for Children
Agency for Healthcare Research and Quality (AHRQ) Awards $2 Million to fund “The SafeCare@Home4Kids Learning Lab: Designing Safer Healthcare at Home for Children“ Congratulations to CYSHCNet researcher Carolyn Foster, MD, MS, Attending Physician at Ann & Robert H. Lurie Children’s Hospital of Chicago, and Nicole Werner, PhD, Associate Professor at Indiana University Bloomington on their grant…
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New Resource for Researchers Added to Primary Data Center
Aligning research with the concerns of patients and families is a top priority for CYSHCNet and its researchers. Although more and more studies involve lived experience partners, inconsistencies in the reporting of this involvement exist. To address this issue, a team of researchers has published international consensus on the key items to report to enhance…
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Disability and Discrimination: A Call to Action for Creating Positive Change, Together
A recent study by Dr. Stefanie Ames and colleagues sheds light on the problem of discrimination against children with complex medical needs by the medical community, emphasizing its significance for children, families, and clinicians. CYSHCNet enthusiastically applauds Dr. Ames’s efforts and appreciates the insightful commentary by Dr. Cook and colleagues, which effectively raises awareness of…
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Disability, Discrimination, and Children with Medical Complexity
New Pediatrics Study Begs the Question: How Can Knowing These Perceptions Improve Systems of Care Disability-based discrimination in health care is happening. And it results in low quality of care, limited access, and negative health consequences. A new study from CYSHCNet researcher Stefanie Ames, MD, MS, looks at the themes children with medical complexity and…