News
Welcome to the CYSHCNet blog. Here we share stories and perspectives of children and youth with special health care needs (CYSHCN), their families and caregivers, and our academic researchers. Interested in sharing your story? Email us.
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Funding Opportunity for Early-Career Investigators
Applications now open! If you’re an early career researcher interested in health systems research for children and youth with special health care needs (CYSHCN), we invite you to apply for our Emerging Investigators (EI) Guided Research Program. Up to three projects focused on health systems research for CYSHCN will be funded up to $15,000 (1-year). The program has
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Webinar: Transforming Care for Children with Complex Medical Needs
Insights from HRSA-funded Demonstration Sites | April 23, 12:00-1:30pm, ET Children with medical complexity live with health conditions that often require care from different health providers. This system of care can be hard for families to navigate. AcademyHealth and other partners are working to change this system. Join us as we introduce the Enhancing Systems of
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Researchers, We’ve Updated Our Primary Data Center to Help Jumpstart Your Network Studies
The Primary Data Center (PDC) helps researchers design and implement multi-site studies that benefit CYSHCN and their families. We help in three ways: We understand the challenges of conducting multi-site research and look forward to helping you and your team at any stage.
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CYSHCNet Researchers Look at Durable Medical Equipment and Supplies
Many children in the US need support for everyday activities due to health issues. Some kids need durable equipment and supplies (DMES) to help them, like glasses or machines to assist with breathing. Despite these tools being common in everyday care, not much is known about how they’re used and how they impact health. A