Welcome to the CYSHCNet blog. Here we share stories and perspectives of children and youth with special health care needs (CYSHCN), their families and caregivers, and our academic researchers. Interested in sharing your story? Email us.
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Funding Opportunity for Early-Career Investigators
Applications now open! If you’re an early career researcher interested in health systems research for children and youth with special health care needs (CYSHCN), we invite you to apply for our Emerging Investigators (EI) Guided Research Program. Up to three projects focused on health systems research for CYSHCN will be funded up to $15,000 (1-year). The program has
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CYSHCNet Researcher Receives Funding to Improve Healthcare at Home for Children
Agency for Healthcare Research and Quality (AHRQ) Awards $2 Million to fund “The SafeCare@Home4Kids Learning Lab: Designing Safer Healthcare at Home for Children“ Congratulations to CYSHCNet researcher Carolyn Foster, MD, MS, Attending Physician at Ann & Robert H. Lurie Children’s Hospital of Chicago, and Nicole Werner, PhD, Associate Professor at Indiana University Bloomington on their grant
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New Resource for Researchers Added to Primary Data Center
Aligning research with the concerns of patients and families is a top priority for CYSHCNet and its researchers. Although more and more studies involve lived experience partners, inconsistencies in the reporting of this involvement exist. To address this issue, a team of researchers has published international consensus on the key items to report to enhance
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National Research Agenda Cited at Montana AAP Annual Education Conference
The National Research Agenda was spotted by Patricia Notario, MD, the only complex care pediatrician in Montana. We are thrilled to see our work reaching areas of need. Interested in learning more about the agenda? Take this course to learn more!

