News
Welcome to the CYSHCNet blog. Here we share stories and perspectives of children and youth with special health care needs (CYSHCN), their families and caregivers, and our academic researchers. Interested in sharing your story? Email us.
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Funding Opportunity for Early-Career Investigators
Applications now open! If you’re an early career researcher interested in health systems research for children and youth with special health care needs (CYSHCN), we invite you to apply for our Emerging Investigators (EI) Guided Research Program. Up to three projects focused on health systems research for CYSHCN will be funded up to $15,000 (1-year). The program has
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Research spotlight: Do caregivers of young people with asthma feel discriminated against?
CYSHCNet researcher Stefanie Ames, MD, presents on social determinants of health and disparities for young people with asthma. Here’s the presentation on YouTube!
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What Does True Family Partnership in Research Look Like?
Nikki Montgomery shares her experience as program and communications manager of Family Voices AND as a parent of a medically-complex child. An expert in plain language and health literacy, Nikki is passionate about helping families and researchers come together to engage in work that matters. Tell us about the goals you have in the role
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New Journal of Pediatrics Study Examines Colorado Medicaid’s Paid Family Caregiving Program
Colorado allows parents to be employed as certified nursing assistants (CNAs) for their children. A new network study compared paid family CNAs providing skilled care to children with medical complexities to non-family CNAs, looking at retention and hospitalization rates. It’s a model we speculate could address workforce shortages while providing income to family caregivers. This