Category: General information
-
Announcing Our New Name!
The Children and Youth with Special Health Care Needs National Research Network (CYSCHNet) has a new name! We are now called: The Systems & Policy Research Network. The name might be new, but The Systems & Policy Research Network (SPRNetwork) is the same great organization trusted by researchers, policy makers, care systems, clinicians, families of…
-
2025 Pediatric Complex Care Awards
This year’s Pediatric Complex Care Award winners have been selected and recognized. Lifetime Achievement Awards were presented to Dr. Ellen Roy Elias and Cheri Scott, and the Mid-Career Award was presented to Dr. Rahel Berhane.
-
Recent Network Publications, Posters and Presentations
With 20 presentations and posters, one publication, and others in press or accepted, 2025 has been a productive year for the Systems & Policy Research Network. Network projects highlight key issues relevant to the health and wellbeing of children and youth with special health care needs and their families. 2025 Publications (as of November 1,…
-
2025 Emerging Investigators
Each year, the Systems & Policy Research Network‘s Emerging Investigator (EI) Guided Research Program welcomes up to three projects focused on health systems research for children and youth with special health care needs. The yearlong partnership with the Emerging Investigators provides funding and mentorship and helps build the foundation for family partnership in research. In…
-
Dr. Rahel Berhane Honored for Mid-Career Achievement in Caring for Children with Medical Complexity
Rooted in Lived Experience For Dr. Berhane, the journey into complex care began not only as a pediatrician but also at home, as the mother of a son with Down syndrome, autism, and epilepsy. When her son’s care needs grew more complex, she experienced firsthand the broken, maze-like system that so many families must navigate.…
-
Cheri Scott Honored for Lifetime Achievement in Caring for Children with Medical Complexity
The Systems and Policy Research Network (SPRNetwork formally known as CYSHCNet) is proud to announce Cheri Scott as a recipient of the 2025 Pediatric Complex Care Lifetime Achievement Award. This honor celebrates Cheri’s exceptional, lasting contributions to improving the lives of children with medical complexity and their families. About the Award The Pediatric Complex Care…
-
Dr. Ellen Roy Elias Honored for Lifetime Achievement in Caring for Children with Medical Complexity
The Systems and Policy Research Network (SPRNetwork formally known as CYSHCNet) is proud to announce Dr. Ellen Roy Elias as a recipient of the 2025 Pediatric Complex Care Lifetime Achievement Award. This honor celebrates Dr. Elias’s extraordinary career as a clinician, researcher, teacher, mentor, and advocate, whose work has transformed the care of children with…
-
Congratulations to Nora Wells and John Gordon, MD
CYSHCNet is thrilled to announce Nora Wells and John Gordon, M.D., as recipients of the 2024 Pediatric Complex Care Lifetime Achievement Award. The Pediatric Complex Care Lifetime Achievement Award celebrates individuals who have made lifelong, exceptional, long-lasting contributions to help children with medical complexity in many areas, including clinical care delivery, advocacy, policy, administration, research, and…
-
Webinar: Transforming Care for Children with Complex Medical Needs
Insights from HRSA-funded Demonstration Sites | April 23, 12:00-1:30pm, ET Children with medical complexity live with health conditions that often require care from different health providers. This system of care can be hard for families to navigate. AcademyHealth and other partners are working to change this system. Join us as we introduce the Enhancing Systems of…
-
New Resource for Researchers Added to Primary Data Center
Aligning research with the concerns of patients and families is a top priority for CYSHCNet and its researchers. Although more and more studies involve lived experience partners, inconsistencies in the reporting of this involvement exist. To address this issue, a team of researchers has published international consensus on the key items to report to enhance…