Inventory of measures for research in CYSHCN populations

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Inventory Measures search results
Name Domain Topics Age Data type
Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD)
Quality of Life
Emotional Distress
Physical Function – Mobility
Physical Health
Scoping review
Social Health
Ages 2-5
Ages 6-11
Ages 12-18
Parent/caregiver Proxy, Patient
UW Family medical caregiver benefit
Caregiving at Home and Caregiving Experience
Benefits of Caregiving
Under age 2
Ages 2-5
Ages 6-11
Ages 12-18
Parent/caregiver Proxy
UW Family medical caregiver stress
Caregiving at Home and Caregiving Experience
Caregiver Stress
Under age 2
Ages 2-5
Ages 6-11
Ages 12-18
Parent/caregiver Proxy
Six-Item Food Security Module
Health Equity
Food Insecurity
Ages 12-18
Parent/caregiver Proxy
PROMIS Social Health
Family Health
Family Relationships
Peer Relationships
Under age 2
Ages 2-5
Ages 6-11
Ages 12-18
Parent/caregiver Proxy, Patient
PROMIS Physical Health
Child Health, Vulnerability, and Complexity
Asthma Impact
Fatigue
Itch (PIQ-C)
Pain
Physical Activity
Physical Function – Mobility
Physical Stress Experience
Sleep
Strength Impact
Under age 2
Ages 2-5
Ages 6-11
Ages 12-18
Parent/caregiver Proxy, Patient
PROMIS Mental Health
Child Health, Vulnerability, and Complexity
Family Health
Mental Health
Physical Health
Social Health
Under age 2
Ages 2-5
Ages 6-11
Ages 12-18
Parent/caregiver Proxy
PROMIS Pediatric Profiles
Child Health, Vulnerability, and Complexity
Family Health
Anxiety
Depressive Symptoms
Fatigue
Pain
Peer Relationships
Physical Function – Mobility
Under age 2
Ages 2-5
Ages 6-11
Ages 12-18
Parent/caregiver Proxy, Patient
PhenX Toolkit Social Determinants of Health Collections
Family Health
Health Equity
Social Determinants of Health
Parent/caregiver Proxy
Pediatric Medical Complexity Algorithm
Child Health, Vulnerability, and Complexity
Child Medical Complexity
Under age 2
Ages 2-5
Ages 6-11
Ages 12-18
Administrative
Pediatric Integrated Care Survey (PICS)
Care Planning and Coordination
Medical Home and Comprehensive Care Models
Access to Care
Care Goal Creation/Planning
Communication Between Health Care Provider and Parent
Family Impact
Team Functioning/Performance/Quality/Connectivity
Adults
Parent/caregiver Proxy
National Survey of Children’s Health
Access to Services and Supports
Care Planning and Coordination
Caregiving at Home and Caregiving Experience
Child Health, Vulnerability, and Complexity
Family Health
Financing, Payment Models, and Insurance
Medical Home and Comprehensive Care Models
Child's Health
Child's Learning
Child's Schooling and Activities
Experiences with Health Care Providers
Family and Household Characteristics
Health Care Services
Health Insurance Coverage
Nutrition and Physical Activity
Providing for Child's Health
Parent/caregiver Proxy
Family-Centered Care Assessment Tool (FCCA)
Access to Services and Supports
Care Planning and Coordination
Medical Home and Comprehensive Care Models
Care Setting Practices and Policies
Community Systems of Services and Supports
Family/Provider Partnership
Under age 2
Ages 2-5
Ages 6-11
Ages 12-18
Adults
Parent/caregiver Proxy
Family Management Measure (FaMM)
Care Planning and Coordination
Caregiving at Home and Caregiving Experience
Family Health
Child's Daily Life
Condition Management Ability
Condition Management Effort
Family Life Difficulty
View of Condition Impact
Ages 2-5
Ages 6-11
Ages 12-18
Adults
Parent/caregiver Proxy
Family Experiences with Care Coordination (FECC)
Care Planning and Coordination
Care Coordination Services
Messaging
Protocols/Plans
Under age 2
Ages 2-5
Ages 6-11
Ages 12-18
Parent/caregiver Proxy
Family Caregiver Activation in Transitions (FCAT)
Caregiving at Home and Caregiving Experience
Caregiver Self-Efficacy
Adults
Parent/caregiver Proxy
Discrimination in Medical Settings Scale
Health Equity
Discrimination
Adults
Patient
Coping Health Inventory for Parents (CHIP)
Caregiving at Home and Caregiving Experience
Family Integration and Optimism
Social Support and Self-esteem
Understanding the Medical Situation
Adults
Parent/caregiver Proxy
Complex Chronic Conditions
Child Health, Vulnerability, and Complexity
Technology and Care
Child Medical Complexity
Technology Dependence
Under age 2
Ages 2-5
Ages 6-11
Ages 12-18
Administrative
CMS AHC Health Related Social Needs
Family Health
Health Equity
Caregiver Mental Health
Disabilities
Education
Employment
Family and Community Support
Financial Strain
Food Insecurity
Housing Instability
Interpersonal Safety
Physical Activity
Substance Use
Transportation Problems
Utility Help Needs
Parent/caregiver Proxy
Caregiver General Self-Efficacy Scale
Caregiving at Home and Caregiving Experience
Caregiver Self-Efficacy
Adults
Parent/caregiver Proxy
Newest Vital Sign (NVS)
Health Equity
Caregiver Health Literacy
Adults
Parent/caregiver Proxy
Brief Health Literacy Screener (Chew Items)
Health Equity
Caregiver Health Literacy
Adults
Parent/caregiver Proxy